Category Archives: Terminal Cancer, Day by Day

Dying is for the Young

I’m not sure how I feel about that title, but we’re going to go with it.

It occurred to me the other day how lucky we are (????) that Brock and I are only 38 and 37 years old, as we deal with his having terminal cancer. Specifically: those of us who will someday die a gradual death, due to aging or a progressive disease, will naturally get weaker and weaker as our bodies slowly fail. For someone as sick as Brock is, even having a conversation or sitting tires him out.

Sometimes he doesn’t have enough energy to swallow water.

Take a moment and think about how tired you’d have to be, to not be able to swallow.

Normally, someone at this stage in their life is in their eighties or older. Their spouse (if they have one) and friends are around the same age, with their own health challenges. Their parents are deceased. Maybe they have some children, or even grandchildren, who aren’t estranged, who live nearby or who are able/willing to relocate, and who have the work/life freedom to be able to take on the role of caregiver.

Brock, being 38, has a healthy, able-bodied wife of 37 to support him all day, every day. He has healthy, able-bodied parents, in-laws, a brother and sister-in-law. His friends are generally between 25-60 years old.

So when Brock needs help getting up from his Lazy Boy, I’m there — either to pull him up, or to carry over the walker that will lever him vertical. I can move his oxygen tanks up and down the stairs, no problem. I can carry a comfortable folding chair for him to use at the farmers’ market, or when we go to the park with Isaac, along with his bag of supplies.

If we need reinforcements, we have our family and friends on stand-by. Easy peasy.

Now consider the 87-year-old childless widower who is in the final stage of his life, who is sometimes too weak to swallow and who lives alone. Who does he have to keep him company? Who will switch over his oxygen source when there’s a power outage in the middle of the night? Who will help him up from his Lazy Boy recliner?

Hooray for Hospice

We did an on-camera interview with local filmmaker Nick Versteeg and Shelley from Cowichan Hospice on Friday. The video will be part of a fundraising campaign to build a proper hospice house with seven rooms for people who are dying and who (for whatever reason) can’t or don’t want to die at home or in the hospital. People and their caregivers will be able to stay there through the dying process, getting  the professional health care and support they need without having to be in an institutional, loud, chaotic hospital. Currently, there is only one full-service bed like this in Cowichan.

Victoria has a hospice house. I’ve heard only good things from the families in my support group that have used Victoria Hospice. Brock and I would love to see a similar resource in Cowichan, which is why we agreed to be part of their video project.

Because not everyone has a 37-year-old spouse to take care of them.

I see Brock losing his strength and mobility, and I suspect I’ll only really understand what he’s going through when I’m at that stage myself: with luck, at eighty-something. With luck, Isaac or a grandchild will be there to care for me at home, or I’ll have a hospice house to go to.

And sometimes I feel lucky that, even though I won’t be able to have Brock with me for the next fifty years, I’m able to watch him grow old now. It’s like we’re living one of those magic-realism Hollywood stories, Benjamin Button-style, and his life has been fast-forwarded while mine has stayed real-time. I am grateful that I’m able to help take care of the man I love when he needs me.

(For more information on the Cowichan Hospice House project, click here.)

Frogs in a Pot

I ran into an acquaintance at Thrifty’s the other day that I haven’t seen in years. He asked when our garlic would be available for sale at the farmers market.

This happens every few months: I have to break the cancer news to someone who had no idea, who was just making the usual small talk that happens when you encounter a familiar face. I’m not the sort of person to say “we’re fine” and keep quiet: instead, I drop the cancer bomb and watch as the friend’s face shifts through all those familiar stages. Shock, denial, grief.

I can hear the synapses firing in their brains as they struggle to figure out what to say. Most people express how truly shitty and shocking it all is. Many reveal their own family/friend cancer struggles. A few people try to solve Brock’s cancer, which is a natural human response but unhelpful given that most people aren’t oncology specialists.

Brock and I chose to be very public about his cancer diagnosis. We literally sent a press release to the local newspaper. My journalist peep and co-author Sarah Simpson had once told me that “news” was “anything that people want to know about,” and I figured a lot of people in our community would want to know that Brock had terminal cancer, and that our farm would no longer be operating. They were relying on us for their carrots, for chrissake.

My body still remembers that RELIEF it felt when the newspaper story was published (on the front page, above the fold, full colour family photo — I love small towns). Finally I wouldn’t have to drop the cancer bomb everywhere I went. Instead, without saying a word, I got hugs and sympathetic “How are you all doing?” questions. Wow, that relief … Instead of me and Brock and our families carrying this pain, suddenly hundreds of people shouldered it along with us.

So, while I don’t often have to break the cancer news to people these days, it does sometimes happen. As evidenced by my grocery shopping friend.

The thing is … that moment before I told him about Brock dying and about how we’d sold our farm, we’d been two normal adults catching up by the deli counter. Normal people would have discussed the heat, our ever-growing children, and maybe some major life news like moving house or changing a job.

But then the cancer bomb drops and BOOM, things are suddenly serious.

I watched the bomb fall and through his eyes I saw his brain working, searching for the right words, and I realized how Brock and I are not living a Normal Life anymore.

It’s been a gradual change.

The move from our tiny farmhouse to a rented apartment, the sale of the farm, the sales of all that equipment. His naps, his weight loss, his lungs being eaten up by tumours.

On Facebook I see friends’ photos of family camping trips, someone setting out on a Bucket List adventure. Normal people make plans for 2018. They complain about their jobs.

Brock and my world is no longer this Normal world. Our world is visits from home care nurses and palliative care specialists. I set timers to ration Brock’s limited energy. We talk about financial planning for when I’m a single parent. I build Lego sets while Brock naps through the afternoon.

It’s been almost three years of slowly warming water, the changes so gradual that we’ve managed to be Stoic (capitalized because I mean the philosophy) about the whole experience.

Ironically, here’s a conversation we had back in the early 2000s, before Isaac was even born:

HEATHER: I’ve been researching delivery vehicles for the farm and I think we should get a minivan.

BROCK: A minivan? Ugh. I feel so … normal.

HEATHER: Don’t worry. We opted out of normal a long time ago.

Homemade Christmas gift from Heather to Brock.