Tag Archives: 2017

Home for a Rest

In the months after Brock died, when I was busy packing up our stuff to move to Invermere, I wondered if I was missing my opportunity to grieve. I was worried that I would reach Invermere and settle in here to our new (Plan B) life, and be so busy finding us a house and making friends and re-creating Isaac’s active lifestyle that I would just move on to the post-Brock chapter of our life, without ever properly working through the trauma and sadness of losing him.

Instead, I am relieved to find that the numbness I’ve felt since September 21 is finally thawing.

I think I can finally be sad because I’m no longer trying to put on a brave face for the people around me. In Duncan, I was mourning along with Brock’s friends and family, as well as his childhood teachers, fellow volunteers, once-colleagues, farm customers, etc. I can’t help myself — I’ve always needed to “silver-line” other people’s negative emotions, for some reason (I think I just made up a new verb, but that’s the best word I can think of). And so when someone expressed sympathy for me I would (usually) automatically try to comfort them or downplay my own grief.

Many people here in small-town Invermere know about Brock’s death, and have given me their hugs and condolences, but they didn’t know Brock. I can just be sad and accept their sympathy without feeling the need to comfort them.

I’m also finally in a situation where I don’t have to be strong for Isaac. He happily spends entire days away from me, with my sister and mom. I don’t have to be “on” all the time for him.

I read an essay in The Walrus the other day, written by a man (Paul Adams) who lost his wife to cancer four years after her diagnosis. They’d accepted it was terminal, too. He wrote this articulate bit:

“We all come to cancer with the emotional, psychological, and spiritual resources we have, and we use them up. We use them all up.”

I think my friend Maeve was right: I am exhausted. I gave everything I had these past few years. My head has felt full of cotton for months. I remember being a “high-functioning” (as Ryan would say) person, able to multi-task and tackle errands efficiently. I hope that I will be that clear-headed again someday. But these days I am barely a safe driver. In Invermere I have the excuse of being out-of-practice driving on snow and ice, and usually relinquish the wheel of my car to whomever else I’m traveling with. But it’s not just the big horn sheep and black ice that make me unsafe. I can’t maintain focus. I often awake from little “black out” moments of distraction.

I am learning that grief is like sailing through an ocean of icebergs. It isn’t one single thought or memory that makes me sad. There are dozens of things to grieve. I relive Brock’s last four days, including the moment when he stopped breathing and died. I remember our conversations, how funny and unexpected he could be. I mourn the loss of our farm, and Brock’s energy. I think about the future we wanted and should have had. Brock should be here teaching Isaac to skate and ski. Brock should be binge-watching season 2 of The Crown with me until 1am.

It’s bizarre that I’m finally able to be sad here, when otherwise I feel so at home, and happy to be back in the East Kootenays.

There is a bereavement support group in Invermere and I’ve signed up for the next session, which should start at the end of January. A family friend, who lost his wife this year, is halfway through the last session and he says there is a workbook. I love that there’s a workbook. Because it’s work, and because we humans are all so essentially the same, and because a workbook has a start and an end, with steps to follow, and that seems healthier than just sitting around with other grieving people, talking about how sad we are, with no path forward.

A 2053 Perspective

A mental exercise that intrigues me these days … I wonder how Isaac will tell the story of his life when he’s an adult. Say, 40 years old. “My dad died of cancer, and then we moved to Invermere, and my mom …”

What did I do next? Did I make good choices? Were we financially okay? Did we stay cuddle-close or drift apart as he approached his teen years? Was I a good role model and support to Isaac for dealing with his dad’s death? What will he remember, and what will scar him?

It’s mind-bending to see our present reality through that big-picture lens. It’s weird to be the “widowed, single mom” in someone else’s life story.

Advocating for Advocacy

Isaac was born at 34.5 weeks, by C-section. He came out early because I had developed eclampsia (aka pregnancy-induced super high blood pressure) and because the placenta was stupid and had stopped feeding him properly, so he was very small.

Holding Isaac for the first time in the Neo-natal Intensive Care Unit (NICU). He weighed 3 lbs 2 oz at birth.

I was an ill-prepared new mom. We hadn’t yet started our prenatal classes, and I had never cared for a baby. Brock and I had never before changed a diaper. Suddenly we had a newborn to take care of, albeit in the sheltered and uber-supervised world of the Victoria hospital’s Neo-natal Intensive Care Unit (NICU).

Isaac and I lived at that hospital for three weeks. The nursing shifts changed twice a day, and so every 12 hours I had a different set of baby experts advising me on how best to feed and care for my kitten-sized infant.

The advice/direction I received from the different nurses was often contradictory (“You need to get a nipple shield.” vs. “What are you doing? Never use a nipple shield!”), and eventually I realized I had to take ownership of this kid. It was my job to listen to all the nurses, and then do (or fight for) whatever I thought was in Isaac’s best interest.

 

It wasn’t an easy realization for me — I have always been a pleaser.

HEATHER: “I think that maybe we shouldn’t try to stick that feeding tube down Isaac’s nose again, because he seems to be crying and screaming a lot when we try. You’re the expert, of course, but.”

I thought Isaac and my 28 days in the Victoria and Cowichan hospitals was the worst experience ever, but it was actually just training for when Brock was diagnosed with cancer.

Advocates are essential: Heather proves the case with cancer anecdotes

Brock was a big, strong, vocal guy, but when he woke up in early 2015 after having his left kidney (and a gigantic octopus-tumour) removed at a Vancouver hospital, he was dopey with drugs and weak from surgery.

I spent every day at the hospital with him, from 8/9am until 10pm, and I can’t imagine what his experience would have been like without me there to advocate for him.

I don’t know what went wrong with his painkillers, but that first day Brock was in excruciating pain. He was in so much pain that he couldn’t talk, while the doctor tried to have a Serious Conversation with us in Brock’s hospital room. The doctor was being all solemn-faced and all I could see was Brock in speechless agony, contorting in his bed. Why wasn’t the doctor noticing this? (In retrospect, I think he was focused on trying to make us understand that Brock had only a few years to live. We remained in denial for 8 more months, probably due to not hearing that conversation in the hospital.)

I bolted down the hallway to find a nurse, so Brock could get a shot of something, and followed the nurse around until she arrived at Brock’s side with drugs in hand.

Another time, a doctor/nurse asked Brock where his pain was on a scale of 1-10, and when Brock said 10 the guy made him feel like a wuss.

HEATHER: “This man is a farmer. He is not a wuss. If he says the pain is a 10, then that’s a 20 for normal people. Please make it better.”

Heather stops the anecdotes and gets to the point

I believe that most health care workers don’t want their patients to be in pain. I think they have good intentions. I’ve also seen how busy and overworked they are.

The best way we can help the people we love who aren’t able to speak up for themselves (due to age, illness or temporary incapacity) is to be there with them, make sure they’re okay, and advocate for their needs when they can’t. We can ensure they get what they need, whether it’s medication, attention, etc.

It scares me to think that I will someday be in a vulnerable situation and not have someone to advocate for me. I intend to be very nice to Isaac, and train him to be an assertive, polite person.

Heather invents something that might already exist (again)

In light of the Baby Boomers approaching their older years, it would be a useful (and maybe lucrative?) service to be an Advocate For Hire. Maybe this is what social workers and home care aides are supposed to do. Or maybe there is a gap here … maybe someone approaching their needier years would find reassurance in having a thoughtful, attentive, assertive person in their corner, who checks in on them regularly, understands their advance care planning wishes and values, and knows the system well enough to advocate for their client’s needs.

I’ve been thinking about advocacy because I have family members who are caring for their parents. Some of these elderly folks are in care homes, some not. Some of these folks weren’t always good parents to their children.

These children (who are 50-69 years old) make regular visits: some bi-weekly, some daily. I think they are super heroes for doing this. I hope they benefit from the same attention when they need care themselves.

And I wonder about the elderly, the hospital patients, and the NICU babies who don’t have someone advocating for them.